PS To Yesterday’s Post

I forgot something when I wrote yesterday.

In an effort to turn down some of the ssssy sound, I have been experimenting with turning down my sensitivity.  Especially with this right ear, I seldom mess with volume or sensitivity but I thought I would give it a try.  Turning down sensitivity did help the sssssy sound, however, it also did exactly what it is supposed to, it lowered all the sounds I am hearing.  I then tried turning up volume with the sensitivity down and that helped but it still was not to my liking.  Doing all of this made me also realize that in the instance of this ear, my over all sound level has been lowered by turning off the electrodes–something that I did not experience on the left side.

For many lowering the over all sound might not be a bad thing, however, I like (and perhaps have just gotten used to it) lots of volume. I grew up in a home with a hearing impaired mother so we were used to speaking loudly so I like it that way.  If you will remember, I have only ADRO on my everyday program unlike many others (especially newer recipients).  I know several people who were activated 7-8 years ago before the combination smart sounds came out and they too prefer ADRO alone for their everyday program.  Adding other smart sounds to my everyday program suppressed the sound too much for me.  Another factor that might be coming into play is the fact that I have Freedom processors so my microphones are different than the N5 microphones.  Makes me wonder if when I upgrade to the N6 if I too will want something else put on with ADRO for my everyday progam.

I think if there is a lesson learned it is that one size does not fit all and the more things we try and the more educate ourselves as to the possibilities the better our opportunities.  I fully suspect that when I upgrade to the N6 I will not like them initially but certainly I have learned our brain is a very pliable organ (even at my age) and we do adjust.  Even this Vandy map on the right side is something I could live with if I had to but might not be my preference in a few weeks when I go back.

Time will tell.  Thanks again!!!!

Ear Two–3 week observations

Gosh I didn’t realize that it had been three weeks since I posted.  Things have improved, however, there is still a ssssss quality.  A couple of Sundays ago, while I was supposed to be concentrating on the message of the Gospel/sermon, I found myself listening for the ssssss.  It helped me realize that it was in deed the s sound rather than the sh or th that I initially thought.  It is more pronounced at the beginning and end of a word than in the middle.  I also think it makes a difference what letter preceds and follows it.  In going back and looking at the Gospel for that Sunday I remember that the words sin and loves were very ssssy (wonder if there was a hidden message there), but the words ceased and suppose were not.  I suppose I should have made notes after mass so I could remember better.

That same Sunday we went to dinner for Father’s Day and it was a struggle to hear my son.  He does not speak very loudly, however, until this mapping I did pretty well hearing him.  It was a busy restaurant and that added to the difficulty.  The ear has improved since that Sunday 10 days ago.  At that point I was still catching myself thinking that I was talking funny but I realized today that I don’t notice it as much.  I also today tried for the first time to use this ear (right) for the phone—something I have not been able to do since getting the Vandy map almost 4 weeks ago (remember it was a disaster when I tried to use it on day 1).  My husband called me on my office phone and I could in fact hear and understand him—I was delighted.  My right ear has been my phone ear for almost 8 years—it was not my phone ear pre CI and was my weaker ear pre CI so getting used to using the left ear has been interesting.  At this point I feel like I could probably use either ear equally as well—one phone for each ear.  NOT.

Music is still the joy of the entire experience.  After 8 phone calls, I have restored my Sirus radio subscription (imagine a family having two Chevrolet cars—they put it on the wrong car and then no one told me to turn off my blue tooth phone when trying to activate the radio signal).  Happy to be enjoying Margaritaville again.  I have tried to see if one Vandy ear and one clinical ear sound different than two Vandy ears (always leaving the left on Vandy since that is the one that just blew me away with music).  There is a difference but as of now I can’t explain it.  Over the next few weeks my mission is to play with the ears and music.  I also want to try just the right ear with the Vandy map and music to see if there is a difference.  So Jimmy Buffett here I come–too bad I can’t experiment in Key West on the beach.

If I were asked this very moment if I was going to keep the Vandy map on the right, the answer would be sort of.  At the moment, I am thinking about asking for my clinical maps back in 1-3 and keeping the Vandy map in 4.  Now don’t hold me to this as we all know it is a woman’s prerogative to change her mind.  I have a few weeks to think about it—this round is a little longer due to vacations and 4th of July but maybe that is not all bad either because it is forcing me to give this ear more of a chance.  I think it is really important to remember that this is my STAR ear.  From day one it has performed beyond anyone’s expectations so expecting something to be better is a bit unrealistic.  It may happen when I do the testing in a couple of weeks (there is room for the test scores to go high—just not much).  From an everyday standpoint this map is not on par with my clinical map.  Will improvement come in the next few weeks—we shall see—I do know that it has improved in the last 10 days or so.  It is no secret that I have been struggling with this Vandy ear and there have been times when I have been really frustrated.  I has, however, in some ways made more humble because it has reminded me that I didn’t always hear so well.

Sorry no pictures.  Busy week.  Thanks for reading,

Connie

 

 

Test Week & New Ear Observations

Thursday I visited Vanderbilt for my left ear testing.  It had been exactly 4 weeks since I received the research map so I was anxious to see what the dreaded sound proof booth would have to say about the experience. The testing was done on the left ear only to compare with my clinical map testing that we did earlier in May.  Again single words (CNC), consonants (ba, da, ta, etc), sentences in quiet and noise, and the three sounds played and tell which of three sounds is different from the other two–I need to find out the name for this test (it gets progressively harder the better you do—I do this a lot during my research trips).

The study has spoken–I did improve.  I did not get specific numbers for all of the tests as we were a bit pressed for time but the only score that was less than 90% was the hearing in noise at the most difficult condition.  Four weeks ago with my clinical map on this noise test, I scored in the mid 60s (I believe she said 67%), Thursday I scored in the mid 80s with the research map.  I think the significance of this score is that it was a unilateral test.  Past research has shown that bilateral implantation significantly improves hearing in noise for cochlear implantees so I am pretty happy with my  unilateral score.  I will be interested to see if they test me bilaterally with the research maps when I return next month.  Andrea (Vanderbilt audiologist) did do some additional bilateral testing Thursday with my clinical maps so perhaps that is the intention for my next visit.

Someone last week asked me if I had noticed a significant improvement with the research map and from these tests results I would say there was a significant improvement.  Of course I am a firm believer that no matter what the sound proof booth tests say, the tests the real world brings are what is important.  We don’t live in a sound proof booth and need to hear in our natural environment.

I have gushed for weeks now about the sound of music with this map but I also knew that if voices were not clear enough for me I would not keep the research map.  I did learn that I could keep the research strategy with the electrodes turned off for music and go back to my clinical strategy for everyday use, however, I wasn’t sure I wanted to do that and wondered if my ear would be able to adapt to switching between the two strategies fast enough to be of benefit.  I have found, however, that there was some improvement with the research map in my ability to hear in noise and hearing in other situations was as good if not better.  At the end of my appointment Thursday, I was given the choice to keep the research map or go back to my clinical map.  No surprise, I chose the research map.

Final note on the left ear.  As I mentioned before, electrodes 19 & 20 have been turned off since my activation 6 years ago.  I asked Andrea if I had not requested that those electrodes be turned off would the researchers have turned them off.  The answer was no, it was not part of their plan for me.  I find this interesting and hope to do a little experimenting at some point in the future.  I am hopeful that turning them back on at lower levels will give another boost to my hearing.  The possibilities are endless and I again think that having 22 electrodes is a huge advantage.

Next came the new research map in the right ear.  This one is presenting a challenge for me.  I have electrodes 1, 2, 7, 9, and 21 turned off.  There has been lots of conjecture that I must have pretty much optimal placement on this side as my results were excellent from the beginning—the hours of rehab I did on this ear have helped as well.  From the moment the audiologist turned on this research map on Thursday it has been “different.”  As soon as I left the audiologist’s office, I called Britni (my daughter-in-law who is the ENT resident) to see if she had a few minutes so I could stop by and see her before I left Nashville.  My right ear has always been my phone ear so I put the phone up there and expected to carry on a conversation.  Nope—did not happen at all.  I had to switch to my left ear.  First surprise for right research ear.

After the appointment, I was driving to Louisville to meet Mike for a couple of days of R&R for the two of us and I stopped for lunch.  I immediately noticed that the waitress seemed to have a lisp or a sh/ch/s/th quality to her voice.  Was it the southern accent I thought.  Nope, the voices on the radio had the same quality I soon realized.  When I met up with Mike my first reaction was “have you been drinking”—it was 3 in the afternoon.  And it was not just drinking that I was thinking but drinking too much.  Of course I knew better and realized that his voice too has a lispy, loose dentury, s/sh/ch/th  quality to it.  It is the map.  So with a sigh I realized that getting used to this map was going to take time but I am determined to give it my all albeit a bit disappointed.  I could of course take the easy way out and turn to P4 (my clinical map which was left in as a crutch) but I will not do it unless I get desperate.  My brain has to adjust and I will forge ahead.  I am, however, hoping that it does not take weeks to adjust.

As the last two days have evolved I have been trying to listen more carefully and I am now not sure whether it is a sh/ch quality or a s/th quality.  I am now leaning more towards the s/th.  So all of this got me thinking—not necessarily a good thing.  What Hz is responsible for the sh/ch (1500-2000 Hz range) sound and the s/th (5000 Hz range) sound.  Here is a picture of an audio gram showing the Hz for specific consonants/vowels etc. audiogram

Here is a diagram of an array in a cochlea (of course we don’t know how close to mine this is):
cochlea-array

Here is a diagram of what area of the cochlear is responsible for which Hz:cochlea-Hz

Here are my unscientific thoughts.  Because electrodes 1 & 2 are now off (and are possibly laying in the 5000 Hz area), I am wondering if they were getting interference with others further in the cochlear (meaning other electrodes were actually stimulating this area too) and I was never getting a clear signal in that 5000 Hz zone—the s/th sounds.  Or another thought is, could electrodes 7/9 been crossing over and interfering with the electrode in the 1500 Hz zone—the ch/sh sounds.   I have always felt, and testing has affirmed that I have trouble picking out the th sound.  It is also my understanding that I am not alone with this th problem.  So words like that and fat or they and way may sound alike.  I suppose in reality maybe even “normal” hearing people have trouble with these. I will continue to be on alert and see if it is the sh/ch or the s/th that sounds different so stay tuned.

Enough of my uneducated theories.  If I were 25 years younger and much smarter I might start working on a PhD in this stuff but this is much more fun and takes a whole lot less education and I don’t have to worry about answering to anyone about my theories.  It is also much more fun than doing household chores which I am avoiding.

On a positive note —  Do Wah Diddy Diddy by Manfred Mann is the song of the week.  I caught myself making a fool of myself in a store just singing and dancing away while listening to it.  Thank heaven no one I knew was there.

Will update later—thanks for listening to my amateur explanations.  I am determined to see my way through this experiment and will update later.  I need to get some things done this week so this blogging stuff will have to wait.

Happy June all,

Connie